Category: Clinical Sciences/Health Conditions
Objectives: The Australian arm of the International Spinal Cord Injury (Aus-InSCI) Community Survey is part of a global cross-sectional study to describe the ’lived experience’ of people with spinal cord injury (SCI) and identify key factors influencing level of functioning and independence, health, community participation and quality of life.
The Aus-InSCI study uniquely combined data from SCI units in four Australian states, a government insurance agency and three consumer organisations, using privacy-preserving data management, secure transfer and data-linkage processes, to create a representative, population-based, anonymised dataset of people with SCI. The Aus-InSCI questionnaire consists of 125 (international) and additional 68 (national) questions, including socio-demographics, SCI characteristics, body functions and structures, activities and participation, environmental and personal factors, and appraisal of health and well-being.
Aus-InSCI represents the largest and most comprehensive survey of health-related issues, functioning, social inclusion, economic participation and support needs ever conducted in Australia, providing a baseline for future comparison within Australia and international benchmarking.
James Middleton– Professor, John Walsh Centre for Rehabilitation Centre, The University of Sydney
Mohit Arora– Postdoctoral Research Fellow, The University of Sydney
Timothy Geraghty– Professor and Rehabilitation Medicine Physician, Queensland Spinal Cord Injuries Service, Division of Rehabilitation, Princess Alexandra Hospital, Metro South Health and The Hopkins Centre, Menzies Health Institute Queensland, Griffith University
Ruth Marshall– Clinical Director & Associate Professor, South Australian Spinal Cord Injury Service, Hampstead Rehabilitation Centre and Royal Adelaide Hospital, Central Adelaide Local Health Network, Australia
Andrew Nunn– Director, Victorian Spinal Cord Service, Austin Health