SC21 - Prospective Research Using Today's Technologies for Community-Driven Research

Live Q&A Session
The live discussion will not be scheduled but the presenters welcome questions by email

Description: This course will provide an overview of the methods and applications for studies that use primary data collection for effectiveness and safety research, without the assistance of health care providers. Examples of tools used outside of the traditional healthcare setting will be presented, along with an active discussion of what we have learned so far, with current examples from COVID, rheumatology and oncology.

Objectives:

To understand how studies that use prospective data collection without the assistance of medical care professionals can be designed and used to support safety and effectiveness
To describe the methodologic and operational challenges of various use cases
To be able to characterize the strengths and limitations of these approaches, including the unique perspective that these tools can provide.
Outline:

Beyond Safety: Using Social Media to Create a Fuller Picture of Patient Experience [Nabarum Dasgupta]
Methods and analytics for large-scale smartphone studies told through the example of Cloudy with a Chance of Pain [Will Dixon]
Using person-generated health data to understand COVID symptom presentation and progression, and to identify medications and supplements that mitigate the severity of infection [Nancy Dreyer]
Returning to Sport: Effectiveness of COVID-19 Monitoring and Prevention Plans In and Out of a Bubble [Christina Mack]