|The ALiVE Theater hosts workshops related to the lived experience of pain. These CME-accredited sessions are organized by the Global Alliance of Pain Patient Advocates (GAPPA) and are built on a model of co-creation in which the lived experience of pain is incorporated with the latest clinical and research concepts.
Attendees will gain valuable knowledge on topics such as self-management, peer support, healthcare provider communication, patient engagement and more.
After attending the workshop, either live or on-demand, continue the conversation in the networking lounge to gain additional insights.
ALiVE workshops are marked with a purple LE icon in the scientific schedule. Live session times are listed below. Please see the scientific program for additional details.
Schedule of Sessions
From Media to Medicine: Making Sense of Children's Pain in Cultural and Medical Contexts
Children’s pain is experienced in, and strongly influenced by, their social context. How children’s pain is displayed in popular media, and how it is explained and communicated by medical providers, has a powerful influence on how pain is understood and experienced. Nevertheless, little research attention has been paid to the influences of popular media and the clinical encounter on pediatric pain and the meaning of these influences for people with lived experience. This workshop will address these gaps and push forward the conversation about these pivotal socio-cultural influences on children’s pain.
Pain: Don't Go It Alone
This workshop describes the relevance and importance of peer support in chronic pain management. Presentations discuss how peer-led support groups can offer education and self-management strategies for chronic pain patients, along with valuable social interaction.
Self-Management of Pain During a Pandemic: Is this Possible?
This presentation discusses self-management for pain and its meaning from a range of different perspectives including the lived experience of pain, clinical delivery of services, and research. In addition, ways self-management support has been adapted and delivered, using the disruption of COVID-19 as a backdrop, whilst considering wider implications of self-management via telehealth in terms of the human and social aspects will be addressed.
Incorporating the Lived Experience of Pain in Research
In this session, researchers and patient advocates will talk about their experiences in research, clinical guidelines, and treatment programs. As the importance of involving people with lived experience (patient partners) in the co-creation of research protocols, guidelines, and treatment grows around the world, effective partnerships will be crucial to developing better research and clinical outcomes. This session will provide attendees with best practices and lessons learned that can be incorporated into the research and clinical practice of attendees.
Why Don't Patients Do What I Tell Them To? The Art and Science of Healthcare Communication
25 February 2021
In this session we will identify some of the barriers to effective communication between patients and healthcare professionals, including clinicians and researchers. We will then explore various solutions that will help ease the understandable frustrations felt by healthcare professionals and patients alike. This session goes beyond dialogue and checklists, expounding upon how to listen to understand, the value of meaningful conversations that can facilitate change, and how to co-create new, more therapeutic narratives that help patients make sense of their pain in ways that make both biological and biographical sense. We will explore how to guide patients to new understandings of their pain and what can be done, including what they can do, about it.
The Social-Psycho-Bio Model: What Does this Mean for the Lived Experience of Pain?
11 March 2021
This workshop will explore the biopsychosocial model of pain by flipping it to a social-psycho-bio model and discuss ways in which patients, providers and carers can better understand, communicate and empower each other in managing pain more effectively and compassionately. Through interactive art, mindfulness exercises and patient-centered technology, our diverse panel of experts will engage the audience in experiential and didactic learning as we explore the social-psycho-bio model of pain for the lived experience of pain.