Patient Reported Impact of Lupus on Quality of Life Beth Schneider, BA – MyHealthTeams
9:00 AM – 11:00 AM ET
A Mobile Mindfulness Meditation Program May Improve Health-Related Quality of Life for Patients with Rheumatic Disease, a Pilot Study Dana DiRenzo, MD, MHS – Johns Hopkins University
9:00 AM – 11:00 AM ET
Association of Health Literacy and Numeracy with Patient Reported Psychological Outcomes Mithu Maheswaranathan, MD – Duke
9:00 AM – 11:00 AM ET
The Diagnosis of Systemic Sclerosis as a Traumatic Experience: Patients’ Reactions to the Diagnostic Process Patricia Fennell, MSW – Albany Health Management Associates, Inc. Steffens Scleroderma Foundation
9:00 AM – 11:00 AM ET
Discordance in Patient and Physician Assessment of Disease Activity in Relapsing Polychondritis Emily Rose, BS – Systemic Autoimmunity Branch, Vasculitis Translational Research Program, National Institute of Arthritis and Musculoskeletal and Skin Diseases, National Institutes of Health
9:00 AM – 11:00 AM ET
Patient Perspectives on Biobanking and Data-linkage for Rheumatic Disease Research Abhishikta Dey, MD – NSW Rheumatology Advanced Trainee
9:00 AM – 11:00 AM ET
Patient Perspective of Helpfulness of Lupus Medications: A Qualitative Study of Medication Use Within the Type 1 and 2 SLE Model Mithu Maheswaranathan, MD – Duke
9:00 AM – 11:00 AM ET
Reliability of Virtual Sources of Education for Patients with Vasculitis Patil Injean, DO – Loma Linda University Medical Center
9:00 AM – 11:00 AM ET
Patient Perceptions of Diagnosis, Tests, Treatments, Adherence and the Impact on Their Disease Understanding and Participation in Research Studies Viviana Marzaioli, PhD – Trinity College Dublin and University College Dublin
9:00 AM – 11:00 AM ET
Pilot Study of an Internet-Based Pain Coping Skills Training Program for Patients with Systemic Lupus Erythematosus Kelli Allen, PhD – University of North Carolina
9:00 AM – 11:00 AM ET
Development of a Digital Toolkit to Improve Quality of Life of Patients with Systemic Lupus Erythematosus: A Pilot Study Jerik Leung, BA – Saint Louis University, College for Public Health and Social Justice
9:00 AM – 11:00 AM ET
Prevalence of Frailty and Associated Factors in a National Observational Cohort of Rheumatic Diseases Katherine D. Wysham, MD – VA PUGET SOUND/UNIVERSITY OF WASHINGTON
9:00 AM – 11:00 AM ET
Barriers to Influenza Vaccination in Patients at a Tertiary Care Rheumatology Clinic Audra Horomanski, MD – Stanford Hospitals and Clinics
9:00 AM – 11:00 AM ET
Survey of Medical Cannabis Use in Lupus and Scleroderma Wassim Karkache, MD – Wassim Khalil Karkache
9:00 AM – 11:00 AM ET
Access to Digital Health in an Urban Rheumatology Population Bruce Youm, BS, BA, MPH – Dental School
9:00 AM – 11:00 AM ET
Estimation of Clinically Important Differences in Patient-Reported Outcomes Measurement Information System (PROMIS) Measures in Juvenile Myositis Kaveh Ardalan, MD, MS – Duke University Medical Center
9:00 AM – 11:00 AM ET
Primary Non-adherence in Patients with Systemic Lupus Erythematosus Ankoor Shah, MD – Duke University
9:00 AM – 11:00 AM ET
How Did SARS-CoV2/COVID-19 Pandemic Affected Patients with Rheumatic Diseases in Latin America? A Regional Survey from PANLAR Daniel Fernández-Ávila, MD, PhD, MSc – Pontificia Universidad Javeriana - Hospital Universitario San Ignacio
9:00 AM – 11:00 AM ET
Reversing Seasonal Decline of T2T Outcome in RA Patients Under Double Hits by Chinese New Year and COVID-19 Epidemic via Online Interaction with SSDM Rong Mu – Peking University Third Hospital
9:00 AM – 11:00 AM ET
Implementation of an Evidence-based Transition Clinic in a Pediatric Rheumatology Academic Institution Rebecca S. Overbury, MD, MS – University of Utah
9:00 AM – 11:00 AM ET
The Influence of YouTube on Spreading Awareness and Patient Education Regarding Systemic Lupus Erythematosus Priyatha Garlapati, MD – LSUHSC Shreveport
9:00 AM – 11:00 AM ET
Concerns and Behaviors of Patients with Common Autoimmune Rheumatic Diseases in the United States Early in the COVID-19 Pandemic Michael George, MD – University of Pennsylvania
9:00 AM – 11:00 AM ET
Implementation of Web-Based Patient-Reported Outcome Measures (PROMs) in SLE Clinical Care: A Multi-Center Prospective Cohort Study Shanthini Kasturi, MD, MS – Tufts Medical Center
