Impacting Change Through Facilitation and Advocacy for Lupus Monica e. Watson, MD, -None- – non profit
9:00 AM – 11:00 AM ET
Low- and Hi-Tech Tools for Enhancing Patient-Hospital Care Team Communication in the Context of Rare Disease Ida Hakkarinen, -None- – self (patient)
9:00 AM – 11:00 AM ET
Connecting with Rheumatology Professionals and Thought Leaders Inspired the Creation of a New Program Focused on Relapsing Polychondritis (“RP”), a Rare Rheumatic Disease: Participating at ACR Annual Meetings Has Provided Exceptional Opportunities to Learn and Build Relationships Nancy A. Linn, RN – Relapsing Polychondritis Foundation
9:00 AM – 11:00 AM ET
My Multidisciplinary Healthcare Team and Patient Advocacy Groups Saved My Life Michael Linn
9:00 AM – 11:00 AM ET
Coping Through Advocacy - My Story Living with Relapsing Polychondritis Allegonda Imeson, -None- – The Canadian Society for Relapsing Polychondritis
9:00 AM – 11:00 AM ET
Only in My Dreams Can I Do the Things I Used to Do: Where There Is Research, There Is Hope Dan Smith, n/a
9:00 AM – 11:00 AM ET
Improving Communication with My Physician Drastically Improved My Health Whitney A. Carter, -None- – Lupus and Allied Diseases Association, Inc.
9:00 AM – 11:00 AM ET
Patient Participation in the COVID-19 Global Rheumatology Alliance as a Model for Involving Patients from the Ground Up Carly Harrison, BS – LupusChat
