Patient Perspectives

Moderator(s)

• 

  Amanda Myers, MD, CCD

  Rheumatologist
  NorthShore University HealthSystem

The goal of the Patient Perspectives session is to allow people affected by rheumatic disease to share their journeys and experiences living with rheumatic diseases with the thousands of rheumatology healthcare providers who attend ACR Convergence. Patients will present their submissions which address the following question: “What adaptations did you and/or your healthcare team adopt to better care for your health?"

Learning Objectives:

• Acknowledge the breadth of strategies that patients engage in to help cope with the challenges of chronic disease
• Describe processes by which patients and members of their healthcare teams actualize innovative solutions to improve patient well-being
• Describe creative problem solving by patients on behalf of themselves and the community of others with rheumatic diseases

Presentations:

• 12:00 PM – 12:15 PM ET

  An Integrative Approach to Managing Rheumatoid Arthritis (RA): Healing the Body, Mind & Spirit
  Elisabeth Abeson, MA – Founder, The Padma Collective
• 12:15 PM – 12:30 PM ET

  Patients with Relapsing Polychondritis ("RP") and an Advocate Manufactured Custom Cloth Masks to Combat COVID-19: This Mask Project Provided a Sense of Purpose, Created Unity, Increased Awareness of RP, Facilitated Research, and Generated Hope
  Isabel Bautista, -None- – None/Patient
• 12:30 PM – 12:45 PM ET

  “Knitting a Community of Hope”- Supporting, Empowering and Educating Those Living with Lupus, and Overlapping Conditions and Their Loved Ones via in Person and Virtual Support Groups That Include Art Therapy, and Wellness Techniques Is Key; Mental Health Is as Important as Physical Health
  Juana Mata, BA – Looms4lupus.org
• 12:45 PM – 1:00 PM ET

  COVID-19, Racism, and Gender Discrimination: The Function of Stress in Widening the Gap in Health Disparities
  Christele Felix, -None- – LupusChat