Patient engagement/self-management
.png "Carole Dodge, OT, CHT photo")
Carole Dodge, OT, CHT
University of MIchigan-Michigan Medicine
Kimberly Rapoza, PhD
Mercy College
Kathleen Kenney-Riley, APRN
Albert Einstein College of Medicine
Shari Salzhauer Berkowitz, PhD
Mercy College
Lupus affects many areas of individuals’ lives including physical, cognitive, social and emotional functioning, often resulting in significant disabilities and poor quality of life. Lupus impacts individuals productivity in daily activities, school and work as the disease progresses, and these effects may be more significant and cumulative over time. The debilitating and unpredictable nature of the disease has been found to have long-term negative impacts on activities of daily living, education, socializing, work productivity and maintaining employment. Providing support systems to optimize these individuals’ functioning requires that providers be aware of the impact of the disease using a biopsychosocial assessment framework and refer them for services by multiple providers when needed, including rehabilitation services. This session will discuss results of a study assessing adolescents with lupus perceptions of functional status including physical, emotional and social well-being, and the relationship between functional status and quality of life. Faculty will discuss ways for providers to collaborate and communicate with adolescents with lupus to improve self-management and development of interventions to optimize functioning.
