2019 AER Conference
Panel II: Using Social Behavioral Data to Provide Insight into Health-Related Experiences
.jpg "Kimberly M. Nelson, PhD, MPH <br> photo")
Kimberly M. Nelson, PhD, MPH
Assistant Professor, Boston University School of Public Health
Teresa Doksum, PhD, MPH
Senior Director of Quality and Research Ethics; IRB Chair; Research Integrity Officer, Abt Associates Inc.
Luke Gelinas, PhD
Chairperson, Advarra
Senior Advisor, The Mult-Regional Clinical Trials Center of Brigham & Women's Hospital and Harvard Medical School
Julie Slayton, JD, PhD
Director, Office for the Protection of Research Subjects, University of Southern California
Professor of Clinical Education, University of Southern California
Moderator(s)
Panelist(s)
This panel will address questions and concerns that arise for IRBs as they review studies that may appear biomedical, but in actuality represent SBER. Studies may be related to health outcomes, yet focus primarily on participants’ experiences and behaviors (e.g., collecting social media posts from pregnant women with cancer to focus on their experience with pregnancy, not the progression of their disease; collecting Twitter data of smoking study participants to see their level of smoking-related advertising exposure; collecting Facebook data documenting interactions between a LGBTQ support group leader and LGBTQ participants on risky behavior in an effort to decrease risky behavior, etc.). The panel will also address how IRBs can help educate biomedical and social science researchers on the “rules” or ethical considerations of working in the social media space while conducting SBER.