Healthy Behaviors and Choices (e.g. Fitness, Tobacco, Opioids, Nutrition)
Sharing Session - 60 Minutes
In the United States (U.S.), up to 2.2 million individuals are living with hepatitis B (HBV), a disease that is silent and largely undiagnosed, but preventable and treatable. However, HBV testing rates in the U.S. are dismal. An estimated 65-75% of Americans living with HBV are unaware that they are chronically infected, and thus are living with an increased risk of dying prematurely from liver failure, cirrhosis, or liver cancer.
In 2017, the Hepatitis B Foundation (HBF) launched #justB, a national, multi-lingual storytelling campaign, with the goals of increasing awareness and advocacy around hepatitis B; decreasing stigma and discrimination associated with the disease; and promoting hepatitis B testing, vaccination, linkage to care, and treatment. HBF organized a series of digital storytelling workshops, where participants connected with other people directly affected by HBV, learned how to share their stories for education and advocacy, and created short videos for the #justB campaign.
This presentation will discuss the value of using personal stories for hepatitis B awareness and advocacy, screen 2-3 digital stories, and provide examples of how the stories are being shared publicly. This presentation will also share findings from evaluation surveys, participant interviews, story screening events, and audience reach/impact analysis to demonstrate that the power of using storytelling for health education and health promotion is not only in its ability to raise awareness and engage more people in discussion about a little known and highly stigmatized disease such as hepatitis B, but also in how it positively impacts the storytellers themselves.