Presentation Authors: Nima Baradaran*, Columbus, OH, Elaine Allen, Kathryn Quanstrom, Michael Sadighian, Aron Liaw, Hillary Copp, Benjamin Breyer, Lindsay Hampson, San Francisco, CA
Introduction: Sexual health and potential contributing factors in adults with genitourinary congenitalism (GC) are relatively unknown.
Methods: An anonymous online survey was distributed using FacebookÂ® advertising to adults with GC. Participants completing the entire survey were included. Sexual satisfaction was assessed using PROMIS Sexual Function Profile v1.0 evaluating satisfaction with sex life among both males and females. Other survey metrics included patient demographics, Neurogenic Bladder Symptom Score (NBSS), Transitional Readiness Assessment Questionnaire (TRAQ), PROMIS questionnaires on anxiety, depression, physical function and social isolation, as well as the Connor-Davidson Resilience Scale. PROMIS surveys were scored using the HealthMeasures Scoring Service, with a T-score of 50 representing the median of the general population. Univariate and multivariate analysis was performed using STATA.
Results: 282 patients completed the survey of which 122 (43%) were sexually active in the past 4 weeks and responded to the sexual satisfaction question. 80.3% were non-hispanic white, 90.2% had spina bifida, 27.1% had a VP shunt, and 68.9% had a history of prior urologic surgery.In Univariate analysis (table 1), overall TRAQ score, the â€œtalking with providersâ€ domain of TRAQ survey, having consequences from neurogenic bladder (UTIs, stones), NBSS quality of life, PROMIS social isolation and depression, and resilience score were statistically significantly associated with sexual satisfaction. In multivariate analysis after adjusting for all significant covariates, only the â€œtalking with providersâ€ domain on TRAQ remained statistically significant.
Conclusions: Adults with GC who score high on â€œtalking with providersâ€ domain of TRAQ report better sexual satisfaction. This finding could be explained by improved self-advocacy among this group that could potentially result in better treatment of their underlying sexual dysfunction.
Source of Funding: Grant from NIH/NIDDK K12K083021