Focus Session

Focus Session 4: ISSCR Ethics Committee

Focus Session: ISSCR Ethics Committee: SETTING ETHICAL STANDARDS: DRIVING CLINICAL TRANSLATION AND COUNTERING PREDATORY MARKETING

6/20/2018
09:00 - 12:00

Presentations:

Jeremy Sugarman

Johns Hopkins University, United States

Jeremy Sugarman, MD, MPH, MA is the Harvey M. Meyerhoff Professor of Bioethics & Medicine, professor of medicine, professor of Health Policy and Management, and deputy director for medicine of the Berman Institute of Bioethics at Johns Hopkins University. He is internationally recognized as a leader in biomedical ethics with particular expertise in applying empirical methods and evidence-based standards for evaluating and analyzing bioethical issues. His contributions to both bioethics and policy include his work on the ethics of informed consent, umbilical cord blood banking, stem cell research, international HIV prevention research, global health, and research oversight. He has served on the Maryland Stem Cell Research Commission and is a member of ISSCR’s Ethics and Public Policy Committees. He also co-chairs the Johns Hopkins’ Institutional Stem Cell Research Oversight Committee. Dr. Sugarman has been elected as a member of the American Society of Clinical Investigation, Association of American Physicians, and the Institute of Medicine. He is a fellow of the American Association for the Advancement of Science, the American College of Physicians and the Hastings Center.

Presentation(s):

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Douglas Sipp

RIKEN Center for Biosystems Dynamics Research and Keio University School of Medicine, Japan

Douglas Sipp is a researcher focusing on science and regulatory policy at the RIKEN Center for Biosystems Dynamic Research (BDR), and project professor at Keio University School of Medicine and Global Research Institute. He graduated from Rutgers University with a degree in English Literature in 1991. After working in the software and publishing industries, he joined the RIKEN Center for Developmental Biology (CDB) as head of the communications office in 2002. Since 2009, he has conducted research on policy and ethics issues in the translation and commercialization of stem cell research, which remain his core interests.

Presentation(s):

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Claire Tanner

The University of Melbourne, Victoria, Australia

Dr Claire Tanner is a Research Fellow in the Ethical, Legal and Social Implications (ELSI) Program in the Centre for Stem Cell Systems at The University of Melbourne. Dr Tanner received her BA (with first class Honours) from The University of Queensland and her PhD from Monash University. Claire is an experienced qualitative researcher and has worked for many years with patients, patient advocacy groups and scientists in projects exploring the impacts of science in society. She has also explored the social mechanisms and dynamics that increase inequities and expose patient populations in different health contexts to risk and harm.

Presentation(s):

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Tamra Lysaght

My research interests lie broadly around the sociopolitical, ethical and regulatory issues surrounding stem cell innovation, regenerative medicines, precision medicine, genomics and reproductive technologies. I have worked on policy issues with the Committee for Ethics, Law and Society of the Human Genome Organisation, the Technical Working Group on Ethics at the World Health Organization, the Singapore Ministry of Health and Bioethics Advisory Committee. I am currently an Assistant Professor and Phase Director of the Health Ethics, Law and Professionalism (HeLP) Programme at the Centre for Biomedical Ethics, National University of Singapore. I hold multiple grants on projects examining the ethics and regulation of innovative stem cell-based therapies, genome editing and Big Data, and have research interests in governance issues surrounding the return of incidental findings and data sharing in precision medicine.

Presentation(s):

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Graziella Pellegrini

University of Modena and Reggio Emilia, Italy

ISSCR Innovation Award co-recipient


Graziella Pellegrini is Full Professor of Biology, University of Modena and Reggio Emilia. She is Coordinator of the Cell Therapy and Qualified Person of Center for Regenerative Medicine, R&D Director and co-founder of Holostem Terapie Avanzate. She has relevant experience on epithelial stem cells, melanocytes for pigmentation disorders, oral mucosa, urethra, phase I gene therapy of epidermolysis bullosa, cell therapy by cultured human epidermis, of ocular surface from 1995, for treatment of limbal stem cell deficiency blindness; translation of cell therapy under ATMP European rules.

Presentation(s):

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Ian Kerridge

Ian Kerridge is Staff Haematologist/Bone Marrow Transplant physician at Royal North Shore Hospital, Sydney and Professor of Bioethics and Medicine at Sydney Health Ethics at the University of Sydney. Ian trained in medicine at the University of Newcastle, BMT at the Royal Free Hospital in London and philosophy at the Universities of Sydney, Newcastle and Cambridge. He is the author of 6 textbooks of ethics and over 350 papers on ethics, philosophy, haematology and BMT. His current research interests in haematology include myeloma, apheresis and late effects of BMT and in ethics include biobanking, the ‘selling’ of autologous stem cells, conflict-of-interest, prescription drug policy, assisted dying and organ donation and transplantation.

Presentation(s):

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Roger Barker

University of Cambridge

Roger Barker is the Professor of Clinical Neuroscience at the University of Cambridge and Consultant Neurologist at the Addenbrooke's Hospital Cambridge. He is a guest professor at the University of Lund, Sweden and a PI in the MRC-Wellcome Trust Stem Cell Institute in Cambridge. For the last 25 years he has run research that seeks to better define the clinical heterogeneity of two common neurodegenerative disorders of the CNS- namely Parkinson's (PD) and Huntington's disease (HD). This has helped him define the best way by which to take new treatments into the clinic, in particular cell based therapies. He currently co-ordinates an EU funded transplant programme using human fetal tissue for patients with PD and is part of a new EU and global initiative (GFORCE-PD) that is seeking to take stem cells to trial in patients with PD.

Presentation(s):

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