Conference Presentation: Destination: Patient Outcomes – Our Journey to Improving Patient Care

Understanding the New Era of Empowered, Engaged e-Patients

Sunday, January 21
9:00 AM - 10:00 AM
Location: Mediterranean 4-8

Session Description
For almost four decades, leading physicians have said patients are the most under-used resource in healthcare, a sentiment amplified by statements like “Nothing about me without me.” But slogans alone don’t cause change, and the time has come to teach clinicians (and patients/caregivers) how healthcare must evolve in the internet age, and to seek the evidence, rationale, and theoretical basis for these practices. While many patients are not yet “e-patients” (empowered and engaged), new care models are emerging and real. Today it’s clear that when new methods are understood and developed, the workload can be rebalanced and be more fulfilling for all.

Our innovative, unconventional keynote will be shared, fittingly, by the best-known exemplars of this new model: Stage IV cancer survivor “e-Patient Dave” deBronkart and his physician, Dr. Danny Sands. They’re two of the co-founders of the Society for Participatory Medicine and co-authors of Let Patients Help: A Patient Engagement Handbook. We will learn about the transformative and potentially disruptive movement of participatory medicine, and we’ll leave informed – even empowered – to take effective new actions on behalf of our learners.

Learning Objectives:

"e-Patient Dave" deBronkart

Co-founder and Chair Emeritus
Society for Participatory Medicine
Nashua, New Hampshire

Dave deBronkart, known on the internet as e-Patient Dave, is the author of the highly rated Let Patients Help: A Patient Engagement Handbook and one of the world’s leading advocates for patient engagement. After beating stage IV kidney cancer in 2007 he became a blogger, health policy advisor and international keynote speaker. An accomplished speaker in his professional life before cancer, he is today the best-known spokesman for the patient engagement movement, attending over 500 conferences and policy meetings in seventeen countries, including testifying in Washington for patient access to the medical record under Meaningful Use.

A co-founder and chair emeritus of the Society for Participatory Medicine, e-Patient Dave has appeared in Time, U.S. News, USA Today, Wired, MIT Technology Review, and the HealthLeaders cover story “Patient of the Future.” His writings have been published in the British Medical Journal, the Society for General Internal Medicine Forum, iHealthBeat, and the conference journal of the American Society for Clinical Oncology. In 2009 HealthLeaders named him and his doctor to their annual list of “20 People Who Make Healthcare Better,” and he’s appeared on the cover of Healthcare IT News and the Australian GP magazine Good Practice.

Dave’s TED Talk Let Patients Help went viral, and for years was in the top half of the most viewed TED Talks of all time with over a half million views; volunteers have added subtitles in 26 languages, indicating the global appeal of his message. In 2012 the National Library of Medicine announced that it’s capturing his blog in its History of Medicine Division, and he was the Mayo Clinic’s 2015 Visiting Professor in Internal Medicine.


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Daniel Z. Sands

Speaker, Consultant, Thought Leader
Harvard Medical School
Newton, Massachusetts

Danny Sands is passionate about healthcare transformation, non-visit based care, collaboration in healthcare, and participatory medicine. For over twenty years he has worked at the intersection of health care, technology, and business. His career began at Beth Israel Deaconess Medical Center, where he trained in clinical informatics and went on to develop and implement numerous systems to improve clinical care delivery and patient engagement. He then became chief medical officer for Zix Corporation, and helped them become a leader in secure e-mail and e-prescribing. He then served as chief medical informatics officer at Cisco providing both internal and external health IT leadership and helping key customers with business and clinical transformation using IT. Dr. Sands is currently a popular speaker and consultant working with a portfolio of innovative companies, who blogs at and is active on Twitter as @DrDannySands.

Dr. Sands has earned degrees from Brown University, Ohio State University, Harvard School of Public Health, and trained at Boston City Hospital and Boston’s Beth Israel Hospital. Dr. Sands currently holds an academic appointment at Harvard Medical School and maintains a primary care practice in which he makes extensive use of health IT (much of which he helped to introduce during his tenure at Beth Israel Deaconess).

Sands is the recipient of numerous health IT awards, has been elected to fellowship in both the American College of Physicians and the American College of Medical Informatics, and is a founder and co-chair of the board of the Society for Participatory Medicine. In 2009 he was recognized by HealthLeaders Magazine as one of “20 People Who Make Healthcare Better.” He is the co-author, with e-Patient Dave deBronkart, of Let Patients Help.


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Understanding the New Era of Empowered, Engaged e-Patients

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