Hospital-based: Outpatient

Spinal Muscular Atrophy: Physical Therapy Management in the New Frontier

Saturday, November 10
2:15 PM - 3:45 PM
Location: Meeting Room 4/5 - Convention Center

1 in 50 people carry the gene for SMA, and in the United States 1 in every 6,000 to 10, 000 people develop spinal muscular atrophy. SMA is a devastating, life threatening illness that until last year had no approved treatment. With the approval of the first treatment by the FDA in December 2016, the face of SMA has changed. With that change has come new standards of care, new treatment philosophies and changed outcomes as these individuals reach milestones previously thought impossible. As physical therapist we are intimately involved with the care of these patients and their families. We are able to intervene and advocate at a level that is imperative to achieve best outcomes and optimize function. With groundbreaking and revolutionary research we can learn to more effectively work together to change the lives of this important group of people.

Learning Objectives:

Laurey Brown, PT, DPT, PCS

Physical Therapist
Ann and Robert H. Lurie Children's Hospital of Chicago

After graduating from the University of Illinois with degrees in Psychology and Human Development & Family Studies, Laurey went on to Washington University in St. Louis where she received her Doctorate in Physical Therapy. She was a LEND fellow at Children's Hospital, Boston and has worked for the past 10 years in pediatric positions at Easter Seals of Massachusetts; Boston Children's Hospital; Pathways.org; and, is currently at Lurie Children's Hospital of Chicago. She is committed to the care of children with neuromuscular disease and is a clinical evaluator for neuromuscular research as well as a clinician in the neuromuscular clinic.

Presentation(s):

Send Email for Laurey Brown

Christa M. Weigel, PT, DPT, PCS

Physical Therapist
Ann & Robert H. Lurie Children's Hospital of Chicago

Presentation(s):

Send Email for Christa Weigel

Kristin J. Krosschell, PT, DPT, MA, PCS

Associate Professor
Northwestern University

Kristin is an Associate Professor in the Departments of Physical Therapy and Human Movement Sciences and Pediatrics at Northwestern's Feinberg School of Medicine. She has over 30 years experience as a pediatric PT and professor in both the clinic and research settings, with a focus on infants and children with neuromuscular disorders. Her research has primarily focused on SMA and outcome measure development. She has served on multiple committees related to SMA: SMA Standard of Care Committee, NIH CDE Project for SMA, Rasch Measurement Committee for SMA Outcomes, the CureSMA Medical Advisory Council and various Pharma Advisory Boards.

Presentation(s):

Send Email for Kristin Krosschell


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