Health and Health Care
103 - Health and Health Care: Addressing Disparities in Chronic Conditions for Patients and Caregivers
Monday, July 16
1:15 PM - 2:30 PM
Location: Empire Room-Lower Level
Loida Tamayo, MPH
Social Research Scientist & Rural Health Data Lead
Centers for Medicare & Medicaid Services Office of Minority Health
Erin Kent, PhD
ICF Technical Specialist; Scientific Advisor for the Outcomes Research Branch
NCI Healthcare Delivery Research Program; Division of Cancer Control and Population Sciences
Margaret Longacre, PhD, MSHE-Integrating Caregivers in Cancer Care: An Understanding of Caregiver Tasks, Training, and Involvement in Clinical Care
Loida Tamayo, MPH-Racial and Ethnic Disparities in Chronic Conditions Among Rural Medicare Beneficiaries Age 65+
Erin Kent, PhD-Cancer Caregiving in the U.S.: Highlighting Older Adult Caregivers
Angelica Herrera-Venson, DrPH, MPH-Disease Diagnosis as Related to Outcomes for Disease Management Programs
This session explores disparities in chronic conditions, including cancer, for patients and caregivers. The first presentation looks at disease diagnoses as related to outcomes for disease management programs. Evidence-based health promotion and disease prevention programs (EBPs), such as Chronic Disease Self-Management Education (CDSME) Programs, HomeMeds, and Matter of Balance, can significantly improve health outcomes for older adults through improved medication management, better self-care, and healthier lifestyle choices. Using data from 350,000 racially and ethnically diverse evidence-based program participants who completed an EBP between 2010 to 2018 across the U.S., collected from Administration for Community Living-funded CDSME grantees, the primary objective was to examine the extent to which chronic illness type and comorbidity influenced self-confidence in chronic disease management in CDSME Program participants, and improved balance and physical activity among falls prevention EBP participants. The next presentation looks at racial and ethnic disparities in chronic conditions among rural Medicare beneficiaries age 65 and over using 100% Fee-for-Service Medicare administrative claims data for the year 2015. The findings will serve to inform health programs that address the elimination of health disparities in rural Medicare populations and increase the delivery of care for this vulnerable population. These data will also support the development of tailored interventions to address disparities in chronic conditions within rural communities. The next presentation highlights older adult cancer caregivers in the U.S. using data from the 2015 Caregiving in the U.S. (CGUS) dataset, a nationally-representative online probability-based panel study of unpaid adult caregivers. The analysis compares cancer and non-cancer caregivers to determine similarities and differences in characteristics and experiences. The presentation highlights older adult cancer caregivers, including characterizing their care roles and task, burden level, and their perceptions about their own physical, financial, and emotional health. The final presentation examines integrating caregivers in cancer care, including caregiver tasks, training, and involvement in clinical care. Drawing from the National Alliance for Caregiving (NAC) report entitled “Cancer Caregiving in the U.S.: An Intense, Episodic, and Challenging Care Experience” the data analysis was drawn from the 2015 Caregiving in the U.S. dataset, a nationally-representative online probability-based panel study of unpaid adult caregivers. The Cancer Caregiving Report analysis compared cancer and non-cancer caregivers to determine similarities and differences in characteristics and experiences. This presentation will expand upon the report by highlighting caregiving experiences and preferences of those caring for hospitalized patients of varied ages.
- Describe disparities in the reach of chronic disease self-management programs to racial/ethnic minority groups since 2010.
- Define some aspects of rural Medicare beneficiary demographics.
- Assess the ways in which cancer caregivers provide support their loved ones and compare the type and intensity level of assistance to non-cancer caregivers.
- Recognize differences in patient hospitalizations in cancer caregiving compared to the non-cancer contexts.