Health and Health Care

103 - Health and Health Care: Addressing Disparities in Chronic Conditions for Patients and Caregivers

Monday, July 16
1:15 PM - 2:30 PM
Location: Empire Room-Lower Level

Margaret Longacre, PhD, MSHE-Integrating Caregivers in Cancer Care: An Understanding of Caregiver Tasks, Training, and Involvement in Clinical Care
Loida Tamayo, MPH-Racial and Ethnic Disparities in Chronic Conditions Among Rural Medicare Beneficiaries Age 65+
Erin Kent, PhD-Cancer Caregiving in the U.S.: Highlighting Older Adult Caregivers
Angelica Herrera-Venson, DrPH, MPH-Disease Diagnosis as Related to Outcomes for Disease Management Programs

This session explores disparities in chronic conditions, including cancer, for patients and caregivers. The first presentation looks at disease diagnoses as related to outcomes for disease management programs. Evidence-based health promotion and disease prevention programs (EBPs), such as Chronic Disease Self-Management Education (CDSME) Programs, HomeMeds, and Matter of Balance, can significantly improve health outcomes for older adults through improved medication management, better self-care, and healthier lifestyle choices. Using data from 350,000 racially and ethnically diverse evidence-based program participants who completed an EBP between 2010 to 2018 across the U.S., collected from Administration for Community Living-funded CDSME grantees, the primary objective was to examine the extent to which chronic illness type and comorbidity influenced self-confidence in chronic disease management in CDSME Program participants, and improved balance and physical activity among falls prevention EBP participants. The next presentation looks at racial and ethnic disparities in chronic conditions among rural Medicare beneficiaries age 65 and over using 100% Fee-for-Service Medicare administrative claims data for the year 2015. The findings will serve to inform health programs that address the elimination of health disparities in rural Medicare populations and increase the delivery of care for this vulnerable population. These data will also support the development of tailored interventions to address disparities in chronic conditions within rural communities. The next presentation highlights older adult cancer caregivers in the U.S. using data from the 2015 Caregiving in the U.S. (CGUS) dataset, a nationally-representative online probability-based panel study of unpaid adult caregivers. The analysis compares cancer and non-cancer caregivers to determine similarities and differences in characteristics and experiences. The presentation highlights older adult cancer caregivers, including characterizing their care roles and task, burden level, and their perceptions about their own physical, financial, and emotional health. The final presentation examines integrating caregivers in cancer care, including caregiver tasks, training, and involvement in clinical care. Drawing from the National Alliance for Caregiving (NAC) report entitled “Cancer Caregiving in the U.S.: An Intense, Episodic, and Challenging Care Experience” the data analysis was drawn from the 2015 Caregiving in the U.S. dataset, a nationally-representative online probability-based panel study of unpaid adult caregivers. The Cancer Caregiving Report analysis compared cancer and non-cancer caregivers to determine similarities and differences in characteristics and experiences. This presentation will expand upon the report by highlighting caregiving experiences and preferences of those caring for hospitalized patients of varied ages.

Learning Objectives:

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David T. Huang, PhD, MPH, CPH

Branch Chief
National Center for Health Statistics, CDC

CDR David T. Huang is the branch chief for the Health Promotion Statistics Branch, leading a staff of 18 who provide data and statistical support to the national Healthy People initiative at the CDC’s National Center for Health Statistics (NCHS). He holds a PhD in Industrial Engineering from the Georgia Institute of Technology and an MPH in quantitative methods from the Harvard T. H. Chan School of Public Health. CDR Huang is a member of the charter class of Certified in Public Health (CPH) professionals and has authored scientific articles and charts appearing in the Journal of the American Medical Association (JAMA), American Journal of Public Health, Annual Review of Public Health, American Journal of Epidemiology, Journal of Public Health Management and Practice, and Morbidity and Mortality Weekly Report (MMWR).

Presentation(s):

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Margaret L. Longacre, PhD; MSHE

Assistant Professor
Arcadia University

Margaret Longacre, Ph.D., has a doctoral degree in Health Policy from the University of the Sciences (Philadelphia, PA). Dr. Longacre also received an M.S. in Health Education from Arcadia University and a B.A. in Psychology from Wake Forest University. Her doctoral dissertation and subsequent research interest has revolved around informal or family caregiving, including understanding health system impacts.

Prior to joining the faculty at Arcadia University, Dr. Longacre was the Director of Research at the Cancer Support Community (CSC). At CSC, Dr. Longacre led several caregiving research initiatives, including 1) the Cancer Experience Registry: Caregivers to understand the social and emotional experiences of informal caregivers, and 2) a study to develop and validate a distress screening and referral program for cancer caregivers. She was also a co-author of a national report on cancer caregiving (“Cancer Caregiving in the U.S.: An Intense, Episodic and Challenging Care Experience”) with the National Alliance for Caregiving and the National Cancer Institute. In addition, she also led several analyses to understand patient perception of value in cancer care as well as access to services.

Prior employment also included working at Fox Chase Cancer Center (FCCC) under the direction and mentoring of Dr. Carolyn Fang, Co-Leader of the Cancer Prevention and Control program. While at FCCC, Dr. Longacre initiated a study to identify the information needs and psychosocial experiences of family caregivers for head and neck cancer patients. She has several publications on informal caregiving, including demonstrating relevance to broader health system and policy issues.

Presentation(s):

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Loida A. Tamayo, MPH

Social Research Scientist & Rural Health Data Lead
Centers for Medicare & Medicaid Services Office of Minority Health

Loida Tamayo is a Social Research Scientist & Rural Health Data Lead at the Centers for Medicare & Medicaid Services Office of Minority Health. She received her master’s in public health at Texas A&M School of Rural Public Health. Her most recent publication is “Emergency Medical Service-based Care Coordination Serving Three Rural Communities” in the Journal of Health Care for the Poor and Underserved (April 2016). Ms. Tamayo’s research interests include rural health disparities within Medicare beneficiaries and minority health in rural areas. She is currently completing her dissertation in “Vulnerable Populations within Medicare” for her doctoral degree in health services research at Texas A&M School of Public Health.

Presentation(s):

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Erin E. Kent, PhD

ICF Technical Specialist; Scientific Advisor for the Outcomes Research Branch
NCI Healthcare Delivery Research Program; Division of Cancer Control and Population Sciences

Erin Kent, Ph.D., M.S. is a Scientific Advisor for the Outcomes Research Branch. For five years prior to this new role, she served as an Epidemiologist and Program Director in ORB. Previously, Dr. Kent was a Cancer Prevention Fellow (CPF) in the Office of Cancer Survivorship. In addition to expertise in epidemiology and health services, Dr. Kent has a background in mixed methods research and community-based participatory research. Dr. Kent has led a program of research in informal cancer caregiving, including the establishment of funding opportunities to develop interventions for cancer caregivers (PAR-16-317, PAR-16-318), a Small Business Innovation Research (SBIR) concept to develop digital platforms to connect cancer caregivers to care delivery teams, and efforts to expand observational research efforts to further characterize caregiver burden. Dr. Kent serves as scientific lead for the SEER-Medicare Health Outcomes Survey (SEER-MHOS) linked database on patient-reported outcomes and as senior advisor for the SEER-Consumer Assessment of Healthcare Providers and Systems (SEER-CAHPS) survey- and claims-linked database on patient experiences with care. Dr. Kent received her PhD from the School of Social Ecology, University of California-Irvine.

Presentation(s):

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Angelica Herrera-Venson, DrPH, MPH

Associate Director, Data & Evaluation, Center for Healthy Aging
National Council on Aging

Dr. Herrera is a public health gerontologist experienced in the conduct and evaluation of evidence-based programs in community-based settings.

Presentation(s):

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