AliveAndKickn’s mission is to improve the lives of individuals and families affected by Lynch Syndrome and associated cancers through research, education, and screening.
Lynch syndrome is a hereditary cancer condition caused by a mutation in one of several mismatch repair genes in which affected individuals have a very high chance of developing colorectal cancer, endometrial cancer, and various other types of aggressive cancers, often at a young age. One in every 279 Americans has Lynch syndrome, but as much as 95% of these people are not aware of it.
AliveAndKickn has developed The HEROIC Registry, the first of it's kind patient-centric genetic database that will enable patients to take an active role in furthering research into Lynch Syndrome genetic mutations. The HEROIC Registry allows patients to contribute medical information and their experiences living with Lynch Syndrome and its associated cancers to help researchers develop new treatments, understand the various Lynch genetic mutations, write medical papers and conduct further studies and clinical trials.
PO Box 38
PO Box 38
Haworth, New Jersey 07641