Supporting Grassroots Efforts
Grande Ballroom A
Target Audience: Family Members
Data comes in a variety of forms: charts, graphs, spreadsheets, reports, articles. No matter the shape it takes, data tells a story. Those stories play a powerful role in advocacy through demonstrating the great things people with intellectual and developmental disabilities (I/DD) are doing as well as showing where the gaps in supports and services remain. Our advocacy for and with individuals with I/DD is at its best when we have concrete data to back it up. That’s why The Arc in collaboration with the University of Minnesota’s Research and Training Center on Community Living launched the 2017 Family and Individual Needs for Disability Supports (FINDS) Survey.
The FINDS Survey, first fielded in 2010, was a groundbreaking and needed examination of the supports that people with I/DD receive across the country based on responses from parents, siblings, and other caregivers detailing their perspectives on the supports their clients and loved ones receive in education, employment, community living, and other life-span activities.
The results of this survey, highlighted in a summary report published by The Arc in 2011, revealed that many people with I/DD were failing to receive the supports needed to live independent and fulfilled lives. This data is used to advocate at the federal and state policy levels for increased funding in in-home supports and respite services.
In an effort to remain informed and responsive to the challenges facing today’s disability community, The Arc and the University of Minnesota conducted the 2017 FINDS survey. This survey comes at a critical time for many within our community, as current proposals will have an impact on the future of many of the funds and support services that people with I/DD currently benefit from. The survey sought caregivers (family or otherwise) living in the US and its Territories aged 18+ who provide frequent, primary support to share their experiences in an effort to paint a modern and diverse picture of I/DD across America.
This session will share survey findings with a focus on data needed to drive innovation, stimulate collaboration, and motivate action to continue to promote and protect the human rights of people with I/DD while actively supporting their full inclusion and participation in the community throughout their lifetimes.
Director, Research and Training Center on Community Living
Institute on Community Integration, University of Minnesota
Amy Hewitt, PhD has an extensive work history in the field of intellectual and developmental disabilities and has worked in various positions over the past 30+ years to improve community inclusion and quality of life for children and adults with disabilities and their families. At the University of Minnesota she directs research, evaluation and demonstration projects about community long term services and supports for children/adults with I/DD, including autism. She has authored numerous journal articles, curriculum, reports, and books/book chapters. She is an Associate Editor of the AAIDD Journal Intellectual and Developmental Disabilities, Past President of AAIDD, Treasurer of the AUCD Board, and she is a board member of The Arc Minnesota. Dr. Hewitt earned a BS in Political Science and Psychology and a Masters Degree in Social Work at Indiana University; and a PhD in Social Work at the University of Minnesota.
Thursday, November 2
2:00 PM – 3:00 PM
Research and Training Center on Community Living, Institute on Community Integration, University of Minnesota
Lynda Lahti Anderson is a researcher at the University of Minnesota. Her primary interests are supporting families, health and health disparities. Her professional experience includes providing residential supports and care coordination (case management) for adults with I/DD. She is the parent of a child with Tourette's Syndrome and a caregiver for family members with intellectual disabilities and brain injuries.
Thursday, November 2
2:00 PM – 3:00 PM
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