Direct to Consumer

Oral Presentation

(DTC4-02) FamTechCare Study: A Telehealth Intervention Linking Dementia Care Experts with Caregivers of People with Dementia

Sunday, April 23
3:31 PM - 4:00 PM
Location: W224 CD

Objectives
Describe key elements of the FamTechCare telehealth study intervention
Identify caregivers' priority problems for providing at-home care for people with dementia
Apply successful aspects of the at-home video monitoring support intervention to other telehealth projects

Methods
The FamTechCare study is a telehealth study that uses an in- home video monitoring intervention to link dementia care experts with caregivers providing in-home care for People with Dementia (PWD). This study is a multii-site (Iowa or Kansas) randomized clinical trial with repeated measures (baseline, 1 month, 3 months) with family dyads (caregiver and PWD) randomly assigned to an intervention or attentional control group. Families were eligible if the PWD had Alzheimer's Disease or another form of dementia. Caregivers use a HIPAA_secure app on an iPAD to upload videos for review by a team of dementia care experts, who provide weekly individualized feedback. Outcome measures include caregiver burden, stress, depressive symptoms, sleep issues, self-efficacy for managing PWD symptoms, and satisfaction with home monitoring. Data on satisfaction with home monitoring are from a preliminary analysis of the first 23 dyads (14 intervention, 9 control) who have completed the study.

Results
Families were very satisfied with the home monitoring system. The Satisfaction with Home Monitoring instrument has 13 scored items on a 5 point scale (1=strongly disagree, 5=strongly agree) with a range from 13 to 65. Both intervention and control caregivers completed the measure. The mean score for the Intervention Group was 56.3 (s.d. 6.0, range = 48 - 65). The mean for the Control Group was 53.7 (s.d. 5.3, range = 46 - 63). All study participants reported the training to use the home monitoring unit was helpful; 83% reported it was easy to upload videos. For the intervention group, 78% reported having fast feedback was helpful; only 7% reported that it would have been better to have an in-person visit. Two people dropped due to technology-related issues (1 reported difficulty with iPAD, 1 reported not wanting to submit personal care videos). Privacy concerns were reported by 17% of participants.

Conclusion
Overall, families were highly satisfied with the home video monitoring intervention. Training and practice in the use of the iPAD and the recording app (Behavior Connect) is an essential aspect to caregiver acceptability and use of this intervention. Having weekly feedback by a team of dementia care experts was reported to be helpful, and very few participants reported preferring an in-home visit. Privacy-related concerns were addressed by encouraging participants to talk directly to the camera with a description of sensitive issues such as bathing and toileting rather than recording them.

Kristine Williams

Sally Mathis Hartwig Professor of Gerontological Nursing
University of Iowa College of Nursing

Kristine Williams is the Sally Mathis Hartwig Professor in Gerontological Nursing and Director of the Csomay Center for Gerontological Excellence at the University of Iowa College of Nursing. Dr. Williams’ interest in improving care for older adults developed during her early career in home health and as a family nurse practitioner. Dr. Williams’ NIH-funded research program tests interventions designed to improve communication between nursing home staff and residents with dementia, promote self-care of assisted living residents using cognitive training, and support family members caring for persons with dementia using in-home monitoring and professional feedback. She is a fellow of the Gerontological Society of America, the American Academy of Nursing, and the National Academies of Practice. Her research linking elderspeak communication to behavior of persons with dementia was highlighted by the Alzheimer’s Association and reported on Good Morning America and in the New York Times.

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Diane Blyler

Project Director
University of Iowa

Diane Blyler is the Project Director of the FamTechCare study, a telehealth study in the College of Nursing at the University of Iowa. Her research focuses on health disparities and on long-term outcomes for people with chronic and/or life-threatening conditions.

Presentation(s):

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(DTC4-02) FamTechCare Study: A Telehealth Intervention Linking Dementia Care Experts with Caregivers of People with Dementia



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