Clinical Services

ePoster Presentation

(EP-112) Evaluating the Role of Telehealth in the Care of Children with Medical Complexity

Monday, April 24
9:45 AM - 10:00 AM
Location: Experience Zone - ePosters

Objectives
1. Assess the feasibility of a telehealth device with remote audio/video connection for evaluation of children with medical complexity in the home environment.
2. Evaluate the usability of a telehealth device in transmitting real time images (otoscope, oropharyngeal exam, camera), temperature, and sound (stethoscope for heart and breath sounds)
3. Compare the impact of the telehealth device versus traditional telephone assessment on patient management and user satisfaction

Methods
This pilot study is being conducted as a single center, randomized clinical trial. Participants are randomly assigned to either a control group for standard care (telephone and in person encounters) or an intervention group that receives the telehealth device. All subjects are followed for 3 months and have 24/7 access to the program providers throughout the study period irrespective of group assignment. Those in the intervention group utilize the telehealth device as needed per provider discretion for acute or routine care. Data being collected on all patients includes number of telephone encounters, acute visits, ED visits, hospitalizations, length of stay, 7-day readmission rate, and monthly satisfaction survey. Intervention group parents will also complete surveys on feasibility and usability of the device. Providers will complete assessments of usability in transmitting real time images, sound, and temperature readings, and changes in patient management for each encounter where telehealth might have been used.

Results
Enrollment is complete with 24 patients/families (9 control/15 intervention). Equipment has been distributed and data collection is currently underway. Comparative analysis will be completed by January 2017.

Conclusion
This study employs a novel device in the home setting that may be of significant benefit to children with complex medical needs and their families. The results of this study will add to the existing knowledge base for the use of telehealth in complex care management, pediatric home care management, and will specifically assess the impact of the addition of telehealth to an existing program.

Matthew Amidon

Resident Physician
Department of Pediatrics, Advocate Childrens Hospital

Matthew Amidon, D.O. is a pediatric resident at Advocate Children's Hospital – Oak Lawn. He has been involved in multiple IRB approved research projects during his time in medical school at Midwestern University and undergraduate education at Roosevelt University. He has a specific interest in pediatric critical care and telemedicine

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Denise Angst

Director of the Advocate Center for Pediatric Research
Advocate Childrens Hospital

Denise Angst, PhD, RN is the Director of the Advocate Center for Pediatric Research and has extensive experience in pediatric research design and methods. She will be a collaborator on this project and will assist with research design and methods, analysis and interpretation, and developing presentations and publications.

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Patricia Notario

Medical director of the Coordinator Care for Children with Medical Complexity program
CCCMC, Advocate Childrens Hospital

Pati Notario, MD will be the PI for this project. She is the medical director of the Coordinator Care for Children with Medical Complexity program at Advocate Children's Hospital-Oak Lawn. Dr. Notario has participated in several IRB approved projects during her time at Advocate Children's Hospital as PI and as co-investigator.

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Kathleen Webster

Medical Director of Pediatric Telemedicine
Advocate Health Care

Dr. Kathleen Webster is currently the Medical Director of Pediatric Telemedicine at Advocate Health Care and a pediatric critical care specialist. She has presented on topics related to telemedicine and quality improvement at local, regional and national conferences, and currently serves as the Chair for the Pediatric SIG of the ATA. Her interests include telemedicine applications for quality improvement and business strategies of telehealth.

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Elise Gentile

Certified Pediatric Nurse Practitioner-Primary Care
CCCMC, Advocate Childrens Hospital

Elise Gentile is a Certified Pediatric Nurse Practitioner-Primary care and has 5 years PICU nursing experience in caring for children with medical complexity. She has participated in research studies that took place in the PICU and also has research assistant training and experience completed at the University of Illinois at Chicago. She is the Pediatric Nurse Practitioner for the CCCMC program.

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